First budget for the chartered chapter for $3,000 and there were 200 clients.
Appropriation grant received for $50,000
Funded for $50,000 with part time secretary and rented office.
Secretary to full time with 750 clients.
Appropriation increased to $100,000
Received a Dept of Community Affairs Grant for $100,000 to purchase Office & also received an appropriation from PA Dept of Health for $97,000. We now have 1500 clients.
PA-TSA inserted as a line item in the Pa Dept of Health annual Budget for $100,000.
Pursuit of permanent funding as a non preferred status agency to insure continued funding of $100,000. Full time bookkeeper added.
Gov Ridge did not include PA- TSA funding and a reverse mortgage was secured to continue all services until equity was exhausted. We now have 2000 clients.
PA-TSA was added to the line item funding in the Dept of Health budget at $100,000.
One half time position for second advocate, and part time secretary added, bringing staff to three and one half people. The 4 computers were networked, and all were put on the World Wide Web. Client base now at 3050. We purchased the first agency vehicle to be used by the staff to serve the clients in the state of PA.
Received Grant for ½ of Advocate salary making the position full time and giving us two full time advocates enabling us to be in two places at once. A part time position for secretary is now open which will give us two, for full time coverage. Now have 3102 in clients. We mailed out 3011 information packets in the fiscal year 7/1/99 to 6/30/00 and received 4498 incoming phone calls. We also mailed 10283 newsletters, 2003 individual pieces of information as well as 3916 support group announcements. The two advocates (1 full time & 1 part time) drove 14896 miles in support of our patients.
We did get the funding from the state but the first payment was received on 12-20-01 six months into the fiscal year. Our demand for requested services has continued and as of May 9, 2002 we now have 3202 patients and the advocates have driven over 24,000 miles and completed 153 IEP & In-services.
We put up an extensive website, went to outsourcing a full color quarterly newspaper and did a General Assembly breakfast, spoke to a Tampa Florida Chapter and presented at the American Psychiatric Association Convention in Philadelphia. There are now 3302 clients, we drove over 25,000 miles, 156 in-services and Individual meetings, mailed out 551 packets of information and 2223 pieces of information with 9644 newsletters
In 2003, Mary Lou Reaver, the Founder of the Pennsylvania Tourette Syndrome Association, retired, but the work she began over 20 years ago continues. PA-TSA maintains educational information on Tourette’s, and provides advocacy programs and endeavors to update all of its services to the state of PA.
Held first Parents and Kids conference, despite a snow storm it was a huge success.
The Administrator and Lead Advocate positions changed internally to Administrator and Assistant Administrator. Funding was cut to 58,000. We were able to secure a $40,000 grant to offset the state budget cut. Purchase of a second vehicle.
PA-TSA began offering Consultant Services to schools, we hired a grant writer. We were put back in the state’s budget for $96,000
The state grant was cut to $45,000 for this year. November 1, 2009 the Pennsylvania Tourette Syndrome Association changed our name to the Pennsylvania Tourette Syndrome Alliance, with this change came many others: We disassociated with the National TSA, revamped our website giving members access to additional information and online trainings, changed titles from Advocate to Consultant, new and improved PowerPoint for our presentations including Peer Training. The PA-TSA Newsletter is currently being published internally and is emailed out and posted on our website for members to view. Due to the budget cut we will not be sending them via mail this year.
Due to a lack of Funds PA-TSA has had to layoff our consultant leaving our staff at a total of 3 full time employees and 1 part-time employee. Additionally all staff members have decreased the number of hours worked by 8 hours every two weeks. The need and demand for PA-TSA is still great but the decrease financial support is putting PA-TSA in a very vulnerable position.
PA-TSA depleted it's modest reserve by June of 2011 and combined with delays of State grant money required the Board of Directors to make major shifts in resources. PA-TSA staff was reduced to 2 as we lost our support staff, the 2 remaining staff members were moved to home offices to reduce overhead and the office was rented to a tenant. The Board also directed staff to modify our business plan to enlist and train a corp of volunteers to assist with In-service trainings, awareness and disability advocacy in local communities. PA-TSA was funded by a grant through the PA Department of Health for $71,000. Our 1st printed newsletter in 2 years was sent to over 4,000 homes in PA. An awareness poster was designed by a volunteer and sent to over 2,000 Pediatricians, 200 Neurologists and 700 Libraries across PA.
PA-TSA was funded by a grant through the PA Department of Health for $75,000. PA-TSA advocates for increased funding with the help of Representative Tom Murt. Numerous Representatives and Senators are able to increase funding for Tourette Syndrome to $150,000 for fiscal year 2013-2014 during the last 3 days of the budget negotiations!
PA-TSA's increased funding allows us to hire an Outreach & Volunteer Coordinatior, contract with an answering service, increase the number of schools served with trainings, and increase our connectivity of our online files. Increased outreach and awareness is also planned!