TS Family Camp & Retreat

PA-TSA Fall Family Retreat

Saturday, October 6, 2018
Held at Camp Kon-O-Kwee Spencer
126 Nagel Road
Fombell, PA 16123

Check out our Retreat location: http://www.ycampkok.org/

To Sponsor this event Click Here 

Register for Retreat

Space is Limited!  Don't delay, register today! The registration deadline is September 18th. 
*No refunds will be issued after the deadline.


** Our event registration page is NOW mobile friendly!

We are excited to bring our Fall Family Retreat to the Western side of Pennsylvania. This event focuses on education, support, and awareness of Tourette Syndrome. We will have speakers for adults, activities for the kids, and family time built into our day. A panel of experts will be available for our adults sessions and the kids will enjoy a variety of camp activities. All are welcome to attend!  Adults with TS, Parents, siblings, family members of those diagnosed with TS, Educators, etc.  Our hope is for all our attendees to leave with new knowledge of TS, PA-TSA services, and a greater support system.

Don't miss our morning session presented by,
Dr. Robyn Filipink


Dr. Filipink's certifications are in Pediatrics, Neurology with Special Qualifications in Child Neurology and NeuroDevelopmental Disabilities. She was awarded the Children’s Hospital of Pittsburgh of UPMC, Department of Pediatrics Junior Clinician Award during her first year on faculty.

Dr. Filipink is the Director of the Movement Disorders clinic and the Tourette syndrome clinic. She evaluates, educates and treats patients with a range of symptoms including tics, chorea, tremor, ataxia, dystonia, Parkinsonism and related genetic neurodegenerative disorders. Her expertise in NDD expands her care to patients with Autism Spectrum Disorder, neurodegenerative disorders and genetic syndromes. Dr. Filipink is the Director of the Fragile X clinic. She provides initial evaluations, referrals and long term follow up to children, adults and their families who have Fragile X syndrome and Fragile X Associated syndromes. This clinic participates in the Fragile X Clinical and Research Consortium.

Our afternoon Adult Session will include an expert panel discussion followed by individualized round table discussions with our experts.

We are pleased to announce our expert panelists!

Dr. Amanda Pelphrey, Psy.D.. is a Child Psychologist who specializes in psychological testing & diagnostics, child development and neurobehavioral disorders, including ADHD, anxiety disorders, autism spectrum disorders, infant/toddler developmental delays, language and cognitive impairments, learning disorders and Tourette's disorder. She is certified in CBIT from Tourette Syndrome Behavior Therapy Institute, (TS-BTI).

Beth Ann Heuer, DNP, RN, CPNP- PC, PMHS is a pediatric nurse practitioner at the Child Development Unit at Children;s Hospital of Pittsburgh of UPMC. She is certified as a Pediatric Mental Health Specialist through the Pediatric Nursing Certification Board. She also works in both the Neurofibromatosis and the Tourette Syndrome Clinics at Children's Hospital. Dr. Heuer has spoken locally and nationally on migraine headache management, chronic pain syndromes, lysosomal storage diseases, neurofibromatosis, Tourette syndrome, and sensory processing difficulty in children and adolescents.

Sherrie Myers has been at the helm of the PA Tourette Syndrome Alliance as the Administrator/Consultant for the past 11 years. She has attended countless school meetings, supervised the other consultants at PA-TSA in their work with families and schools and provided training to Educators, Peers, Nurses, Physicians and a variety of community groups. Her experience with Special Education Law, Disability Law and School Accommodations will be an asset to the panel.

Join us for an unforgettable experience! 

Registration Fee includes:
Light Breakfast bar, Lunch & Dinner
Panel of TS Experts and Workshops
Adult Discussion Groups
Camp activites for kids, including: Archery, Climbing Barn, Gaga Ball, and Arts & Crafts
Family and Team Building activities, including: Family Painting, Scavenger Hunt, Trail of Courage, and Fishing
A Talent OR Show us your Accomplishments Show
Conference Materials
Retreat T-Shirt & Other Give-aways
Unforgettable Experience!

(Recommended for ages 6 and up)

The cost for Registration is $40/person

This event is funded in part by Grants
which allows us to reduce the cost of registration per person!

PA-TSA Lifetime Members receive a 10% discount off the registration fee.  All members will receive an email with their discount code prior to the opening of registration.

'Fund' your way to retreat!! Click Here for details on ways to help pay for your retreat experience!

These events could not be possible without our volunteers! 
Are you interested in helping?  For more information visit our volunteer page.
Check out our Retreat Volunteer Opportunities and sign up if you are able to help.  All Youth Mentors receive free registration.

Other questions? Contact our Retreat Coordinator Sara Woolf at 1-800-990-3300 Ext. 1 or saraw@patsainc.org.


News and Events


TS Family Camp 2018
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